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One:carepath is a patient-first, disease-inclusive approach to integrating supportive care within primary care for patients with advanced/decompensated/non-curative COPD, heart failure, cirrhosis, kidney disease or stage 3 or 4 solid organ cancers. This provincial research project includes a co-designed shared care plan template and online digital support tool focusing on optimizing a patient’s quality of life and functional status through careful attention to symptom management, avoiding aggressive treatments where appropriate, and determining a patient’s values and preferences for care. All with the goal to increase informational, relational, and management continuity among all those involved, and reduce hospital admissions and emergency department visits.
Although this research project is focusing on some specific disease processes, the provincial long-term goal is to support any patient who can benefit from supportive care.
This project is lead by Dr. Sara Davison, Dr. Brad Bahler and Dr. Charlie Chen, and will work with primary care and community providers to adapt, scale, and extend the Conservative Kidney Management Pathway to other areas of chronic illness.
This study is funded by the Canadian Institute of Health Research, Alberta Health Services and Alberta Innovates – Strategy for Patient-Oriented Research (SPOR) innovative Clinical Trials (iCT) Rewarding Success Team Grant.
A patient-centered Shared Care Plan template for patients with complex health needs, that allows for iterative and dynamic changes as the patient navigates the health system to support:
A website, with parallel arms for healthcare providers & patients/families that includes a suite of tools and resources leveraging disease specific Alberta Health Services pathways content (where appropriate), accessible for use in primary care, and tailored to the complex patient to support them in their medical home. The content is focused predominantly on:
For more information about about the initiative or how to get involved please contact Tanya Barber at tkbarber@ualberta.ca or Lynn Toon at toon@ualberta.ca.
It is generally accepted that the next step of advancing the Patient Medical Home (PMH) is transparent care planning when good work has been done in:
One:carepath aims to provide tools for health care teams that support shared care planning and care coordination for patients in their medical home.
One:carepath will provide ongoing support to care providers and patients to implement a shared care plan that addresses: 1) patient's preference for care, 2) consideration of multiple health conditions, 3) progression of disease, 4) symptom management, and 5) crisis planning and end-of-life care.
Vision: To help people enjoy life while living with advanced chronic kidney disease by becoming a world leader in kidney supportive care research and clinical innovation.