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Collaborate  with the Kidney Supportive Care Research Group

Dr. Sara Davison, Professor with the Department of Medicine

Alberta Health Service Strategic Clinical Networks (AHS SCNs)

Strategic Clinical Networks are groups of clinicians, patients, operational leaders and other stakeholders who work together to find new and innovative ways of delivering care that will provide better health outcomes and health system performance across the province. Each network focuses on a vital area of health to address priority issues and advance quality improvements on a local and system wide level.

Collaborative partners include Medical, Operational or Scientific Leads within the Cancer, Cardiovascular and Stroke, Critical Care, Digestive, Kidney, Emergency, Respiratory and Seniors Health SCNs, and the provincial Palliative and End of Life Care Group. One:carepath is leveraging the work the SCNs have done around disease specific acute care pathways to adapt and extend those pathways for disease inclusive care in the Patient's Medical Home.

Chelsy George, Research Manager and Study Coordinator

Alberta Kidney Disease Network (AKDN)

The AKDN is a collaborative network of Nephrology Researchers located in Calgary and Edmonton, Alberta, Canada. The AKDN is focused on researching trends in the prevalence of kidney disease and quality of care for patients with kidney disease. By implementing and evaluating care strategies the AKDN helps improve the health and well-being of individuals with kidney disease.

Dr. Davison is a collaborative member of the Alberta Kidney Disease Network.

Dr. Sara Davison, Professor with the Department of Medicine

Alberta Medical Association (AMA)

The AMA is an organization that represents and advocates for physicians and their patients. They provide leadership and support for physicians to provide quality patient-centered care in Alberta.

The AMA Accelerating Change Transformation Team (ACTT) supported the one:carepath project by advising on project tool development. The one:carepath research team utilizes AMA-ACTT communications to reach end users in the Alberta primary care context

Dr. Sara Davison, Professor with the Department of Medicine

Alberta Strategy for Patient Oriented Research SUPPORT Unit (AbSPORU)

The AbSPORU supports researchers conducting patient-centered research with access to experts and knowledge through multiple platforms.

The one:carepath research team is supported by three Alberta SPOR SUPPORT Unit platforms. The Data Platform will link AHS administrative data to create study panel lists and provide statistical analysis support. The Methods Support & Development Platform will assist with data sources, ICD coding algorithms and risk adjustment. The Knowledge Translation (KT) Platform will support the implementation process, including mapping appropriate implementation interventions and the evaluation of audit and feedback data from Plan, Do Study, Act (PDSA) cycles.

Kristin Jennings, Conservative Management Practice Lease

Cancer Care Alberta

Cancer Care Alberta provides care and support for patient's and their family as well as resources for community and primary care providers. Embedded within Cancer Care Alberta is the Cancer Research & Analytics (CR&A) portfolio which was created to support and conduct cancer research.

CR&A will work with AbSPORU Data Platform analysts to link AHS administrative data to create study panel lists for family physicians partnering with one:carepath.

Kristin Jennings, Conservative Management Practice Lease

Dignity in Care

Dignity in Care in an interdisciplinary research team, founded and lead by Dr. Harvey Chochinov, that focuses on providing practical ideas and tools to support a culture of compassion and respect throughout the health care system.

Dr. Davison is a collaborating member of the group, exploring the importance of patient dignity.

Betty Ann Waslysnuk, Kidney Supportive Care Clinical Nurse Educator

Enhancing Alberta Primary Care Research Networks (EnACt)

EnACt is an infrastructure, funded by Alberta Innovates, that is dedicated to supporting engaged scholarship in primary care research in Alberta. To address gaps and build translational capacity within primary care research EnACt allocates resources to develop projects and pre-award support. This may include one-time consultations, on-going guidance, project collaboration, or dedicated support from a Coordinator or Research Assistant.

EnACt will provide one:carepath with the following in-kind support: qualitative data analysis and an adapted Cognitive Task Analysis (CTA) training program to assist practice facilitators as they support the implementation of the pathway.

Health Quality Council of Alberta (HQCA)

The HQCA is an independent government agency that gathers and analyzes information to monitor the healthcare system. They collaborate with Alberta Health, Alberta Health Services, health professionals, academia and other stakeholders to translate that knowledge into practical improvements to health service quality and patient safety in the healthcare system.

The HQCA is a key partner who advised on early project development , and are currently coordinating and analyzing the primary care patient experience survey for the one:carepath project.

Institute of Health Economics (IHE)

The IHE is a not-for-profit organization with expertise in health economics, health technology assessment, and knowledge transfer/exchange. Their mission is to support informed health system policy and investment decisions by providing quality knowledge and evidence synthesis.

The IHE will work with the AbSPORU Data Platform analysts to assist the one:carepath project team with the health economics analysis.

Kidney Disease Improving Global Outcomes  (KDIGO)

KDIGO is a global organization formed to develop and implement evidence based clinical guidelines to improve the care and outcomes of kidney disease patients worldwide.

Dr. Davison co-chaired the international working group for kidney supportive working towards the development of global practice guidelines.

Beth Tupala, Research Nurse

Kidney Health Research Group

The KHRG research team is a non-profit group at the University of Alberta, Canada,  housed in the Department of Medicine. Through patient-oriented research the KHRG strives to enhance the quality of care patients with kidney disease receive and improve ways to prevent the disease.

Primary Care Networks (PCNs)

PCNs are created through an agreement between physicians and Alberta Health Services. They are comprised of groups of family physicians working with other health care professionals such as nurses, dietitians, pharmacists, social workers and mental health professionals to provide comprehensive medical care.

Participating PCN physicians and their member practice teams will work in partnership with the one:carepath team to support the implementation of the  Integrated Supportive Care Pathway.

Standardised Outcomes in Nephrology (SONG)

SONG is an international initiative to establish standardized outcome measures for kidney disease symptoms for clinical trials and other forms of research.  The outcomes are developed from collaboration with patient's, families, researchers, policy makers and all other relevant stakeholders.

Dr. Davison is a collaborative member of the SONG-HD Fatigue Expert Working Group developing standardized outcome measures for fatigue in hemodialysis patients.

Interested in collaborating? Email Us!

Vision: To help people enjoy life while living with advanced chronic kidney disease by becoming a world leader in kidney supportive care research and clinical innovation.

Kidney Supportive Care Research Group (KSCRG)  l  Mailing Address: 8-105 Clinical Sciences Building, University of Alberta, 11350 83 Avenue NW, Edmonton, AB, T6G 2G3  l  Email: kscrg@ualberta.ca  l  Phone: (780) 492-0926 l  Fax: (780) 407-8117

Dr. Sara Davison, Professor with the Department of Medicine
Chelsy George, Research Manager and Study Coordinator
Dr. Sara Davison, Professor with the Department of Medicine
Dr. Sara Davison, Professor with the Department of Medicine
Kristin Jennings, Conservative Management Practice Lease
Kristin Jennings, Conservative Management Practice Lease
Betty Ann Waslysnuk, Kidney Supportive Care Clinical Nurse Educator
Beth Tupala, Research Nurse
Chelsy George, Research Manager and Study Coordinator
Kristin Jennings, Conservative Management Practice Lease