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"I was often surprised by what my patients told me they valued most. If I had never asked the question, I would never have known what their priorities were and what support they needed to reduce their suffering."

 Dr. Sara Davison

Making Sure Patients' Voices are Heard

You can help!  You can share your story, help develop education materials, or be a Patient or Family Advisor on our Working Groups and Advisory committees.

The Kidney Supportive Care Research Group aims to improve the lives of patients with advanced kidney disease and their families. We hope to do this with you and your family’s help to better understand your perspectives and goals so we can better meet your needs. This may  include the development of education materials for patients, training for health care providers and creating new guidelines.

We value and need patient and family input during all our projects and hope that you will consider helping our team.

Are you interested in helping? For more information you can contact us by email at kscrg@ualberta.ca or by phone at (780) 492-0926.

Share your story, help develop education materials, or be a Patient or Family Advisor on our Working Groups and Advisory committees

Upcoming Chances to Share Your Experiences

Help Evaluate the Conservative Kidney Management Pathway and Patient Decision Aid

In partnership with the Kidney Health Strategic Clinical NetworkTM, the Kidney Supportive Care Research Group (KSCRG) has developed, implemented and is now evaluating a province wide Conservative Kidney Management (CKM) pathway for patients who choose to not have dialysis.

One of our evaluation strategies is to hear from the CKM patients what their journey is/has been like on the CKM pathway and their thoughts on the new CKM-Patient Decision Aid:

  • If you are a patient (or family member of a patient) who is currently on the CKM pathway, your care has been influenced by the CKM pathway and we would love to hear your story.
  • If you are a patient (or family member of a patient) that has had the opportunity to use the Patient Decision Aid to help you make a treatment decision we would love to hear about experience using the tool.

The aim of these interviews is to give patients a voice and an opportunity to talk about their experiences and help us evaluate the CKM pathway and/or the patient decision aid from a patient’s perspective. These interviews can take place in the clinic, over the phone, or in your home.

We value and need patient and family input during all our projects and hope that you will consider helping our team.  If you are interested and would like more information you can contact us by email at kscrg@ualberta.ca or by phone at (780) 492-0926.

Vision: To help people enjoy life while living with advanced chronic kidney disease by becoming a world leader in kidney supportive care research and clinical innovation.

Kidney Supportive Care Research Group (KSCRG)  l  Mailing Address: 8-105 Clinical Sciences Building, University of Alberta, 11350 83 Avenue NW, Edmonton, AB, T6G 2G3  l  Email: kscrg@ualberta.ca  l  Phone: (780) 492-0926 l  Fax: (780) 407-8117

Share your story, help develop education materials, or be a Patient or Family Advisor on our Working Groups and Advisory committees
Share your story, help develop education materials, or be a Patient or Family Advisor on our Working Groups and Advisory committees
Share your story, help develop education materials, or be a Patient or Family Advisor on our Working Groups and Advisory committees
Share your story, help develop education materials, or be a Patient or Family Advisor on our Working Groups and Advisory committees
Share your story, help develop education materials, or be a Patient or Family Advisor on our Working Groups and Advisory committees
Kidney Supportive Care Research Group (KSCRG)
Share your story, help develop education materials, or be a Patient or Family Advisor on our Working Groups and Advisory committees
Share your story, help develop education materials, or be a Patient or Family Advisor on our Working Groups and Advisory committees

I was often surprised by what my patients told me they valued most. If I had never asked the question, I would never have known what their priorities were and what support they needed to reduce their suffering.

 Dr. Sara Davison

Making Sure Patients' Voices are Heard

You can help!  You can share your story, help develop education materials, or be a Patient or Family Advisor on our Working Groups and Advisory committees.

The Kidney Supportive Care Research Group aims to improve the lives of patients with advanced kidney disease and their families. We hope to do this with you and your family’s help to better understand your perspectives and goals so we can better meet your needs. This may  include the development of education materials for patients, training for health care providers and creating new guidelines.

We value and need patient and family input during all our projects and hope that you will consider helping our team.

Are you interested in helping? For more information you can contact us by email at kscrg@ualberta.ca or by phone at (780) 492-0926.

Share your story, help develop education materials, or be a Patient or Family Advisor on our Working Groups and Advisory committees