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Staying Informed About Your Chronic Kidney Disease

Managing Your Chronic Kidney Disease Symptoms at Home

You might have some symptoms related to your chronic kidney disease and these symptoms might change over time. For tips on how to manage your symptoms at home or about what type of treatment options may be available please visit www.CKMcare.com.

Always discuss your symptoms with your care providers. They can provide you with more information and can help you manage them.  In addition to tips on how to manage your symptoms, the Conservative Kidney Management (CKM) Pathway website also provides a Symptom Diary to keep track of your symptoms, their severity throughout the day and the effects of any medication you may be taking. This information can be helpful when you talk to to your healthcare team.

Available Symptom Resources for Patients and their Families:

The resource section of the CKM Care website offers a wealth of educational materials designed to help you better manage your symptoms at home. Depending on your symptom, possible recommendations include information about relaxation techniques, postural changes, and if you are able, exercise.  Also, to better manage your renal dietary restrictions the website provides informational brochures on the type of foods to limit or avoid.

Patient information packages on how to manage the following symptoms are available on the website:

Managing your chronic kidney disease symptom at home

Knowing Your Treatment Options

Conservative Kidney Management (CKM)

Dialysis

Transplant

CKM is a treatment option for managing kidney disease. It involves:

  • treating symptoms of kidney disease.
  • preventing or managing problems.
  • protecting and maintaining the remaining kidney function.
  • supportive medical and psychosocial care when needed.
  • helping people plan for the future.

The goals of CKM are for you to live well without dialysis, so you’ll be as comfortable as possible and have a good quality of life.

To learn more about Conservative Kidney Management please visit the CKM pathway website and speak with your healthcare provider.

Dialysis is a form of treatment used to remove waste products and excess water from the body.  It does not cure kidney disease or make kidney's well again, and it does not fully replace your kidney function.

There are two forms of dialysis:

  • hemodialysis
  • peritoneal dialysis

Speak to your health care provider to see if dialysis is right for you.

With advances in kidney transplant methods and improvement in the transplant success, a kidney transplant in now widely considered the be the best way of treating chronic kidney disease for many people.

A transplant may offer the best chance of returning to a more normal life, but it is not suitable for everyone.

Speak to your health care provider to see if a kidney transplant is right for you.

Not Sure Which Treatment Option is Right for You?

If you are having difficulty choosing between dialysis and conservative kidney management (CKM) check out our patient decision aid. This tool is designed to help you decide if CKM or dialysis is right for you based on your preferences, values and health. You can use it to talk with your healthcare team and loved ones about your decision.

How to Plan Your Future Healthcare

Advance Care Planning (ACP)

Advance Care Planning is important for everyone, but it is especially important for those with a life-limiting illness such as kidney disease. It includes thinking about, talking about, and documenting your wishes for healthcare if you can’t communicate or make healthcare decisions on your own. It’s a process that can help you make healthcare decisions now and for the future to make sure your voice is always heard.

Advanced Care Planning (ACP)

Planning your Future Healthcare Involves 3 Important Steps:

  • Thinking about your values, wishes, and goals for your healthcare and what’s important to you.
  • Talking about your values, wishes, and goals with your family and healthcare team
  • Documenting your healthcare wishes in a personal directive

For More Information Please Visit:

Information and Support

The Conservative Kidney Management (CKM) pathway is a resource for patients and care providers to help in the management of kidney disease with a focus on quality of life, symptom management, and living well without dialysis.

If you need health advice or information you can access Health Link 24/7. To contact HealthLink, call 8-1-1, or visit their website

For information regarding individual patient healthcare concerns, direct questions to your healthcare provider or team.

The Kidney Foundation of Canada exists for the enhancement of kidney health and the reduction and, if possible, the elimination of the burden of kidney diseases.  The primary beneficiaries are people at risk of or affected by kidney disease.

The Kidney Health SCN partners with Albertans to achieve excellence in sustainable quality kidney care and outcomes through innovation and evidence based practice. The Kidney SCN strives to optimize prevention, early identification and appropriate management across all ages and stages of kidney health.

NARP is a program offering chronic kidney disease services to people in northern and central Alberta, northwestern Saskatchewan, northeastern British Columbia and the Northwest Territories.

SARP is a program offering chronic kidney disease services to people in southern Alberta (south of Red Deer), and some areas of southwestern Saskatchewan and southeastern British Columbia.

Vision: To help people enjoy life while living with advanced chronic kidney disease by becoming a world leader in kidney supportive care research and clinical innovation.

Kidney Supportive Care Research Group (KSCRG)  l  Mailing Address: 8-105 Clinical Sciences Building, University of Alberta, 11350 83 Avenue NW, Edmonton, AB, T6G 2G3  l  Email: kscrg@ualberta.ca  l  Phone: (780) 492-0926 l  Fax: (780) 407-8117

Managing your chronic kidney disease symptom at home
Advanced Care Planning (ACP)
Kidney Supportive Care Research Group (KSCRG)
Managing your chronic kidney disease symptom at home
Advanced Care Planning (ACP)